The PAUL G. ROGERS DISTINGUISHED ORGANIZATION ADVOCACY AWARD salutes the former Congressman and Research!America board chair, who knew the power of the patient and patient groups. This award  honors a public or private organization or institution that is a strong advocate for medical, public health, or other health-related research at the national, state, or local level. 

Muscular Dystrophy Association (MDA)

Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 other neuromuscular conditions. For 75 years, MDA has led the way in accelerating research, advancing care, and advocating support and inclusion of families living with neuromuscular disease. MDA’s mission is to empower the people we serve to live longer, more independent lives.

In 2025, MDA proudly marks 75 years of legacy, impact, and momentum in the fight against neuromuscular diseases. Since its founding in 1950, MDA has been at the forefront of research breakthroughs, providing access to comprehensive care, and championing the rights of people living neuromuscular diseases. This milestone has been made possible by generations of dedicated support from people living with neuromuscular disease, their families, researchers, clinicians, volunteers, and donors—who boldly drive our mission forward. As we look ahead, we remain committed to honoring this legacy, building on the impact we’ve made together, and continuing our momentum toward transformative progress for people living with neuromuscular disorders.

 

Donald S. Wood, PhD, is the president and CEO of the Muscular Dystrophy Association (MDA). Prior to leading MDA’s mission, Dr. Wood served the organization in many leadership and volunteer capacities. He

 began his career as a research scientist and later became vice chair of MDA’s Board of Directors. He led MDA’s Task Force on Genetics, which played a crucial role in discovering the gene responsible for Duchenne muscular dystrophy (DMD). This in turn, led to the establishment of neuromuscular disease as new, promising fields in the research and medical sectors. Dr. Wood began his career at Columbia Presbyterian Medical Center as an NIH postdoctoral fellow and holds a PhD in physiology from Washington State University.